Dear all: Most sincere thanks from Robert Jordan (via Harriet) go out to
Michael J. Fredericks, Jean Verney-Carron, Evan Harmon, Lisa Kirwood,Ryan Salsamendi, Emma de Laat (hello, Emma!),David Freeman, Helena Taylor and Janet Taylor
for gifts to the Mao Hematologic Malignancies Program -- amyloidosis research. Thank you one and all.
Jim is taking it easy today, since we go up to the Mayo tomorrow for a routine workup -- but as a consolation prize, here is a poem of mine:
Well, I've been offline for a while, but I thought you had the news pretty well from Wilson, plus I needed to rest up, frankly, having had a stretch of in the hospital, then out of the hospital, in and then out, in again, and this time out on a Saturday so I could get on a plane on Sunday, have my tests done at the Mayo on Monday, talk with the doctors on Tuesday, then drive to Minneapolis to speak at Mike Ford's Memorial service. Frankly, I got home in some ways stronger than when I left, but
A running commentary on the Mayo Clinic. I had intended to post before this, but it didn't work out. This began life as bits and pieces and notes I intended to use. It turned into something a little different. Sorry about that. I hope it's coherent.
The first week has been interesting. If you find needles interesting. There have been other sorts of tests – X-rays literally of every bone in my body; a pulmonary function test with me coughing all over the place and the tech sighing and s
RJ sent us a close-up photo of his dragon do-rag. It was a bit hard to see in the previous blog entries. Click the pictures below for a larger image. If you're not sure what this is all about, see his previous blog entries.
Hi, guys. I was going to put up a regular post here today, but that is going to have to wait a few days. You see, Mike Ford died last night. To you, he was John M. Ford, two-time winner of the World Fantasy Award, including for Winter Solstice Camelot Station, the only poem ever to win the short fiction award. Or maybe you're a Star Trek Fan and remember his Star Trek novels, such as How Much for the Just Planet? (the only flat-out comedy among all the Trek novels, I think) or The Final Refl
Hi everyone -- No, this is not Robert Jordan writing. I am invading his blog in order to upload some pictures that he asked me to pass along. I've not quite figured out a way to have him post this many pictures directly to his blog.
Here they are: the eagerly-awaited before and after pictures. Click each image to see the larger version.
The first batch of pictures he sent along were all of the "Before" pictures (with hair). In reference to those Before pics, RJ wrote the following:
Here are a couple of photos from RJ. His comments:
...here are a couple of me, one with the dragon do-rag and one without. Liese Corrigan is coming by this afternoon to take some pics, and I'm pretty sure there will be something better among them. Ugly customer, isn't he!
Personally, I don't think it's THAT bad. The new look reminds me of somebody, but I can't quite put my finger on it. (Maybe James Cromwell)? Hmm. Maybe not. It'll come to me l
Hi, guys. I apologize for it being so long since my last post, but I had a few little rough patches to deal with, and they kept getting in the way. You know how it is. Somehow, and you never quite do know how, you find yourself juggling three eggs when the doorbell rings. You want to put the eggs back in the basket so you can answer the door, but sure as anything, that's just when somebody with shoot another egg in on you, or even two, and you're juggling faster than ever. Well, we have all
I'm back a little sooner than usual this time, because I realized that I left off something very important when I was advising some guys dealing with illness. Maybe the most important thing of all. Laugh. Make her laugh. Make him laugh. Make yourself laugh. Keeping your spirits up has a really great effect, believe me. There are lots of situations where it's hard to find something to laugh at, but in most situations where you can grumble, you can find a laugh in there if you look at it a
I should have a long list of thank-yous for folks who made donations to the Mayo in my name, but that will have to wait until next time because I left the pages with the laptop.
I'm sending Jason something to post, either here on the blog or elsewhere. It's from my brother/cousin Wilson. I thought a long time before deciding to include it. It's awfully laudatory. Besides, you don't think he writes stuff like that for free, do you?
I made it out in record time, and would have made i
Jason here. I received an email over the weekend from Wilson. He actually posted a little news in reply to another blog post. He asked that I bump it up to an actual posting. Here's what he said, in reference to RJ and Harriet:
They're at the Mayo for the 1st 90 day check as I type this. The number is now 2.7. You'll have to get the rest from the big guy.
4th of 3
Okay, guys. This will be another short one. I don't have a lot of energy right now. But I want you to know I'm still kicking.
First off, a few thank yous. The Mayo Clinic -- Amyloidosis Research Program has acknowledged receipt of donations in my honor from Mr. Kevin Woulfe, Mr. Richard Maxton, Mr. Noam Krendel, Dr. Robert Kluttz, and Mr. Chris Peterson. My deepest thanks, and to you in particular, Bob.
The good news is my numbers are climbing. Five days ago I hit bottom, the nad
I thought I'd send a few words just to keep any rumors at bay, and any worries over the length of time since my last post.
First off my thanks to Mrs. Sandy Allen and to Dr. Mark H. McKinney of The Citadel Electrical & Engineering Department for their contributions in my name to the Mayo Clinic Hematologic Malignancies Program -- Amyloidosis Research. Your gifts are very much appreciated.
Thanks also, once again, to all of you who have posted your well wishes for me. It means a lot.
I don't think I've ever broken a promise to you guys before, but I must this time. I won't be in Seattle or Anchorage as promised. Harriet finally allowed as how she was just too tired to make the trip, and I guess that freed me up to take a long look at myself. I can see where I am right now, and for all the brave talk, the chances of me actually making it to Anchorage were somewhere between small and nill. Especially if I expected to walk away at the end instead of being carried. So we ar
As usual, let me start by thanking those who recently have donated to the Mayo Clinic Hematologic Malignancies Program -- Amyloidosis Research in my name. The latest are Ms Brandie Minchew and Mr. Liam Hemmings. Thanks a million, guys.
This will be short, just to keep the worriers a little less worried about any untoward events.
A note to those sending me fan mail. A return address really helps if you'd like any sort of answer, though I've been reduced to postcards of late because of
First off, guys, I want to thank Lewis Nemes for making a donation to the Mayo Clinic Hematologic Malignancies Program -- Amyloidosis Research. Thanks much!
Now. I got some news last week, and I am holding at about a 97% confidence level that it is about as good as it can get for me. A recent blood test looking for lambda light chains (an indication of amyloid production) showed a normal ratio, and if that is right, it means a complete hematologic response, a total stoppage of amyloid pro
I spent the weekend with a man walking a tight rope holding a small parasol in one hand for balance while tipping his hat to the crowd far below with the other. I'm stealing the metaphor from Harriet for that was her description of the circus act RJ is performing trying to keep the medications in balance, do some work and keep you (fans) and we (family) informed.
Over the past two weeks the balance has been difficult to attain. Reining it in slowly, but surely however.
He reads your posts. I read them. All of them. You are all great for your caring and support. Thanks from the recesses of my soul. All of you WOT'ers are like extended family. But as family, I've got to ask that you allow RJ the time to heal. He's been extremely forthcoming with his status, and will continue to be regardless the news. But unless you've seen someone in a similar fight, you really have no idea how much of a struggle he's in. Thank God he's a stubborn ole cuss.
Dear Jason, something to post, to celebrate the season -- and Jim's WONDERFUL news. Love to you all, Harriet
A Genuine Wham-O
Lists for cards, lists for cookies,
lists for books and scarves and games
and candles. Maybe
a bell would fit in there.
Maybe I'll give it up and be a witch.
My ersatz Frisbees –
cards and scarves –
are packed with love,
but never seem to hit the mark,
the tender lips, the gleaming fangs
of those I throw them to.
I'll borrow a young terrier bitch
The dynamic duo has returned from the Mayo with mostly good, but certainly mixed results. Amyloidal deposits are measured as monoclonal free light chain fragments. There are "good and bad" light chains. The good news is that the ratio of good to bad has definitely improved. The mixed news is that both numbers were up. We are ecstatic that the news is positive, but would have liked the offending Lambda light chains to have stayed level or decreased in number. Overall though guys, t
I just got some mail from Brad Condray and "all the Maniacs at wotmania," pages and pages of get well messages. And never a troll in the lot of them. Thanks, guys. I can't tell you what it means. Thanks a lot.
PS Had my first chemo this morning, and though they say the side effects won't kick in for a few days, I have to say, so far, so good.
PPS I decided not to wait on my hair falling out in patches. First visit after leaving chemo was a barber shop where I told the m
Well, the appetite is beginning to slip, and last night was miserable. I wasn't sick, per se, but I felt as if I were about to become sick shortly and I couldn't sleep worth a damn. Oh, well. I'm still doing pretty well. I managed a good (if bland) supper last night and a decent breakfast this morning. I am beginning to look around for any possible sources of calories I can get down for the future. That does mean anything, dark chocolate bars, ice cream, peanut M&Ms, anything. I'm not
I received some additional acknowledgments from the Mayo of people who have sent money in honor of James O. Rigney, so here goes. My deepest thanks to Mr. Michael Nemeth, Mr. Ryan Tibbetts, Mr. Steven Odden and Mr. Spencer Martin. I really can't say how much this means to me.
One thing I should point out is that won't receive an acknowledgement, and you won't get one either, not from me, if you send money in honor of Robert Jordan. Their patient is James O. Rigney, and they don't have a
I know. Not who you wanted to hear from. The Big Guy asked me to update you in his absence.
I just got off the phone with Harriet and RJ, as they were passing through the Atlanta airport en route to the Mayo Clinic. They fly into Minneapolis and will drive the 90 miles to the Mayo this afternoon. Harriet is taking on the driving duties. Love her like a sister, but don't get in her way. She drives by the dictum: lead, follow or get the hell out of the way. Upon arriv
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